A blog to the world who might see a fraction of the joys and challenges of raising a miracle baby! Carter was born with Congenital Hydrocephalus & Macrocephaly in November 2007. He was also diagnosed with Cortical Vision Impairment and Hearing Impairment. Doctors said there was little hope for a full life...well we'd like to show the world what a full life looks like! We have triumphed over many obstacles, yet have many more to face. This is our story.
Friday, February 13, 2009
Our New Wheels
Friday, February 6, 2009
Mystery Solved!
Funny Story: This week was filled with several Doctor visits, some follow up and some check ups and so on, just a normal week in our world. Our pediatrician and speech therapist are concerned about his mis-shaped head and how one ear is slightly higher than the other ear. So we got referred to a Craniofacial doctor. We are to check his jaw and head and see how it’s going to effect his speech and feeding. So anyone who knows me in real life knows that I don’t stand for the po-dunk doctors I have to choose the best of the best so I made my appointment with the head of the Cranio Department (I wont mention names). So we get there and are taken back, Doctor comes in gets our health history and he starts to exam Bug pretty thoroughly without saying much out loud, he’s writing and examining and writing and measuring and writing. I was pretty impressed so far, (remember not a word has been said yet), oh the dr’s wheels were turning. After about 10 straight minutes of examining, he then puts down his pencil and tape measure and…no joke…says “Its my opinion that the reason his head in mis-shaped is due to the Hydrocephalus.” WOW how many years of med school? He then said that he’s not sure he could do much for us and sent us away. We haven’t got the bill yet but I’m pretty sure that little piece of medical brilliance will cost us a pretty penny. SIGH