A blog to the world who might see a fraction of the joys and challenges of raising a miracle baby! Carter was born with Congenital Hydrocephalus & Macrocephaly in November 2007. He was also diagnosed with Cortical Vision Impairment and Hearing Impairment. Doctors said there was little hope for a full life...well we'd like to show the world what a full life looks like! We have triumphed over many obstacles, yet have many more to face. This is our story.
Thursday, November 1, 2007
Congenital Hydrocephalus
Most of you know that our precious baby has a condition called congenital hydrocephalus, which is simply fluid all around his brain. There are 180 different causes and we've went through about that many tests to figure out what caused it, and the finest doctors haven't been able to figure it out. We found out through the routine 20 week ultrasound. We were devastated. We just expected pink or blue and we walked out of that office with our lives changed forever. We've since excepted the condition and we truly feel blessed that he has been sent to us. We know that he is an angel that will touch our family more than anything in the world could. Since our 20 week ultrasound we've been through 11 more ultrasounds, amniocentesis, an MRI and we've met with numerous specialists to learn and prepare. After all of that, all we know for certain is that he will need a shunt placed into his brain the day or two after he's born. We are delivering at the University of Utah hospital and he will be at Primary Children's. We feel comfortable with the doctors we've chosen. We are delivering on November 13, 2007 and we will keep everyone updated as news comes in. We would like to thank our families and friends for all the love and support that you have shown to us, we know we have some hard days ahead and your support helps us know that we can get through each day.
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5 comments:
Hey you two, God Bless and be with you in the delivery of your little angel! Hope everything goes as smoothly as can be expected. This is a great way to keep all your caring friends updated as to how you all are doing in the next little while. Please let me know if there is anything that we can do to help in any way.
Love ya!
Coryn and Matt
Hi, you guys, I think this is a great way to keep everyone informed, you guy's are special and I love you, I just know that you will be great parents, I can't waite to give little Carter a big hug! Please know that I will always be there for both of you,should you need aything........And in time when you need a getaway don't forget aunt Shelly. I will babysit anytime.
Love you guys
Shelly & Trevor
Hey Shields Family,
We have been praying for you daily, we love you so much and pray that God will be by your side at all times. Let me know if I can be any help and Lara once you recover stop by and let me style your hair when you just don't feal like doing it I would love that!
Chase and Angela Lehenbauer
He is beautiful! I can't wait 'til I can hold him. Take good care and we miss you.
-Kerry
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