A blog to the world who might see a fraction of the joys and challenges of raising a miracle baby! Carter was born with Congenital Hydrocephalus & Macrocephaly in November 2007. He was also diagnosed with Cortical Vision Impairment and Hearing Impairment. Doctors said there was little hope for a full life...well we'd like to show the world what a full life looks like! We have triumphed over many obstacles, yet have many more to face. This is our story.
Sunday, March 15, 2009
Upper GI
We went to the GI (tummy) doctor because of our frequent vomiting. Bug vomits every day, most days its several times a day. He eats, he gags, he chokes, he vomits. Projectile vomit is just part of our lives everyday. We started feeding therapy about 6 months ago, she works on eating, food volume, gag reflex, textures, desensitizing, blah (all without success). I think it's probably the biggest trial we have right now. So we were referred to the tummy doctor by all our therapists and doctors, they were just sure that we have something wrong with the structure or the mechanics of our tummy. So we went to the hospital were they gave him a bottle and recorded the fluid going from his swallow to his upper intestines. It only took about 20 minutes and it was very invasive. The radiologist (dude doing the test) said that from his throat to his intestines were perfect!!! We've never received good news from a doctor before, it was quite refreshing. He said that his tummy looked very healthy and "well built". Yeah! What nice news. So what does that mean for our vomiting? Oh that means he's got a mental block with eating, it's called an oral aversion. He has something going on in his brain that tells his body that food is bad and needs to be thrown up. They did confirm he does have reflux. His GI doctor says he is about 6 pounds under weight, he only weighs 20 pounds and he should weigh 26 pounds right now. So more feeding therapy.
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