A blog to the world who might see a fraction of the joys and challenges of raising a miracle baby! Carter was born with Congenital Hydrocephalus & Macrocephaly in November 2007. He was also diagnosed with Cortical Vision Impairment and Hearing Impairment. Doctors said there was little hope for a full life...well we'd like to show the world what a full life looks like! We have triumphed over many obstacles, yet have many more to face. This is our story.
Sunday, November 1, 2009
My Little Turtle!
Sunday, October 11, 2009
Ankle Foot Orthotics
Lets get back to the fun stuff, the day to day stuff. I have tons of info since our last "how we are doing" post. Lets start with DAFO's (Dynamic Ankle Foot Orthoses). Our Physical therapist was concerned with Carter's ankles turning in, here's a pic of before the DAFO's were ordered. She said this sometimes happens to children who don't use their muscles often or have low muscle tone. So in Carter's case he has both those problems. We ordered from Cascade and we love them, well Carter doesn't love them, but they are doing their job. Ug looks painful...
And Here's a pic of Bug in his DAFO's. They're just like little shoes.
And today, just a couple months later, look at the major improvement:

HYDRO MOM TIP: Go to a shoe store and purchase "High Heel traction" for the bottom of the DAFO's. They originally came plastic on the bottom and he slid all over when trying to walk. Payless Shoe store sells high heel traction for just a couple of bucks. Oh and they fit perfectly on the bottom, no need to cut, bonus!
Sunday, September 27, 2009
Walk Pics

Friday, September 11, 2009
Saturday, September 5, 2009
TEAM CARTER!
TEAM CARTER'S WEB PAGE
This website is where you would register to walk, make sure you order your free t-shirt when you register.
We have done several fund raisers for this walk and other hydro events so if you'd like to donate that would be great but we know we've tapped a lot of resources lately. Last year we did have several of our friends and family go around to their friends, families and co-workers and collect donations, that would also be great again this year.
Its our family goal to raise awareness about this condition that Carter lives with every day and we are determined to make a difference for him and others who live with this debilitating condition. We hope to see a cure in his lifetime and you can help us reach that goal with our fundraisers throughout the year.
Our web address for the walk page is: http://www.gifttool.com/athon/OurTeamPage?ID=1488&AID=794&TID=4635
Please e-mail us if you need more information or need help registering at hydroinutah@gmail.com