Brave with Hydrocephalus

A blog to the world who might see a fraction of the joys and challenges of raising a miracle baby! Carter was born with Congenital Hydrocephalus & Macrocephaly in November 2007. He was also diagnosed with Cortical Vision Impairment and Hearing Impairment. Doctors said there was little hope for a full life...well we'd like to show the world what a full life looks like! We have triumphed over many obstacles, yet have many more to face. This is our story.



Saturday, September 6, 2008


Photo and video editing at www.OneTrueMedia.com
at 3:04 PM

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Hydrocephalus Sites

  • -Hydrocephalus Association
  • -National Hydrocephalus Foundation
  • -Children's Hydrocephalus Support Group
  • -Hydro Kids
  • -Life with Hydrocephalus Group
  • -Gabriels Life
  • -Snow Drop

Utah Disability Resources

  • -Utah Parent Center
  • -Division of Services for People with Disabilities
  • -Deaf and Hard of Hearing
  • -Courage Reins – Therapeutic Riding Center
  • -Children with Special Health Care Needs
  • -Center for Persons with Disabilities
  • -Disability Law Center
  • -Common Ground Outdoor Adventures
  • -Brain Injury Assoc of Utah
  • -Utah's Early Intervention
  • -Alexander Graham Bell Assoc
  • -Accessible Homes Foundation
  • -Access Utah Network
  • -Utah Information and Referral Center
  • -Arc of Utah

Visual Impairment

  • -Centers for the Visually Impaired (CVI)
  • -American Foundation for the Blind
  • -National Association for Parents of Children with Visual Impairments
  • -Teaching Strategies for Vision/Hearing Impaired
  • -Utah Library for the Blind & Disabled
  • -Utah Schools for the Deaf & Blind
  • -Seedlings

Shunt: How it Works

Shunt: How it Works

Special Needs Children

  • -Special Child
  • -Sparkle
  • -Sibling of Kids with Special Needs
  • -Slibling Support Project
  • -Be Not Afraid
  • -Children's Disabilities Information
  • -Careplace
  • -IDEA: Special Education Program
  • -Kids Together
  • -New Visions (feeding)

Parent Resources

  • -Baby Sign Language
  • -Infant Message
  • -Parent 2 Parent
  • -Mothering
  • -Kid's Health (great info)
  • -The Magic Foundation
  • -Are you "The Mother at the Swings"?

Email Us:

hydroinutah@gmail.com

Birth Day (52 cm)

Birth Day (52 cm)

1 month

1 month

1st Birthday

1st Birthday

2 Years

2 Years

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Jordan & Carter

Jordan & Carter

About Me

My photo
Eric and Lara
Eric and Lara's Family Blog about our brave baby living with Hydrocephalus. His medical journey with Hydrocephalus has been hard yet so rewarding. What a blessing.
View my complete profile
HEAVEN'S VERY SPECIAL CHILD
A meeting was held quite far from Earth,
It was time again for another birth.
Said the Angels to the Lord above -
"This special child will need much love.
His progress may be very slow,
Accomplishments he may not show.
And he'll require extra care
From all the folks he'll meet down there.
He may not run or laugh or play,
His thoughts may seem quite far away.
So many times he will be labeled
'different,' 'helpless' and 'disabled'.
So let's be careful where he's sent.
We want his life to be content.
Please Lord, Find the Mother who
Will do a special job for you.
She will not realize right away
The leading role she's asked to play.
But with this child sent from above
Comes stronger faith, and richer love.
And soon she'll know the privilege given
In caring for her gift from heaven.
Her precious charge, so meek and mild
is heaven's very special child."
-Poem by Edna Massimilla...

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CARTER IN THE NEWS!

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Carter's Story


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Legal Disclaimer: This website is simply written by a mother of a child with Hydrocephalus. The information contained on this site is for parent support, creative tips, personal opinions and my family experiences. Please note this blog should never substitute the advice of your physician.



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